It all started when...
Through the vision of long time CF sufferer, Mark Morgan, Wings for Cystic Fibrosis, Inc. (W4CF) was born. We are a Non-Profit organization that strives to educate the community and raise awareness to the deadly genetic disease that is Cystic Fibrosis. Cystic Fibrosis does not discriminate, it affects people from birth on into adulthood.
There is not a cure, but there are ways to help those affected "live with" CF. Those methods include costly hospital visits, transplants and medications that are taken daily. Mark had not only experienced the affects of CF first hand, but had also witnessed others struggling with things that many take for granted. Mark made friends, young and old, throughout his many trips to the hospital and had faced the grim fact that some of those friends, had lost their battle and he would never see them again.
A very humbled man, Mark tried to figure out how he could help others that shared his fight. That is when Wings For Cystic Fibrosis, Inc. was born. He wanted this organization to raise awareness as well as raise funds to help others in need. As Mark knew all too well, there is a great financial burden that comes along with what is required to maintain quality of life for a CF patient.
What Wings For Cystic Fibrosis aims to do is raise funds to help families with those financial difficulties. We will achieve that goal by way of fundraisers, racing events and donations.
Please help us to spread the awareness of Cystic Fibrosis and raise funds for families in need. Email us for info at firstname.lastname@example.org
The Wings for Cystic Fibrosis staff
What is Cystic Fibrosis?
Cystic Fibrosis (CF) is a genetic, life-threatening disease that causes lung infections and over time, causes breathing limitations. Those living with CF experience a build up of heavy mucus within their lungs. This mucus can also block the pancreas which makes it more difficult to digest food.
Nowadays, if Cystic Fibrosis is known to run in the family, doctors can test babies before they are born, by way of amniocentesis or other genetic testing. With this ability, diagnosis of the disease can be detected early. There have been some cases where detection hasn't been made until early teens or adulthood.
Like with most sicknesses and diseases, the affects of Cystic Fibrosis are different for each sufferer; mild for some and severe for others. The good news is that while there still is not a cure for CF, people are living twice as long as before and that is due to receiving treatments as early as possible.
Some known symptoms of Cystic Fibrosis include, but are not limited to:
Coughing up thick mucus
Wheezing or shortness of breath
Having frequent episodes of Sinus Infections, bronchitis or pneumonia
Polyps in the nose
Excessive gas, constipation or stomach pain
Weight loss or failure to gain weight
Bulky, oily or foul-smelling stool
Examples of treatments for those with Cystic Fibrosis include, but are not limited to:
Inhaled drugs that are used to thin mucus, clear the lungs and fight infections.
Ibuprofen helps to fight inflammation and reduce any swelling in their lungs.
Enzyme Pills for those experiencing issues with their pancreas. This helps them to digest their fats, proteins and vitamins from their food.
Oxygen therapy is administered for those experiencing severe lung damage.
Most common is the Postural drainage and percussion (cupping). This allows mucus to drain from the small airways to the large ones and then "cupping" is done to loosen the mucus even more which is then usually expelled through coughing.
Through much testing, the FDA is heavily involved in approving drugs that will help those with CF, the latest being a drug called Orkambi approved in 2015. This medication is said to help those who have two copies of the gene (one from each parent). This drug is aimed to treat the underlying condition and has shown to improve lung function. This drug, however, is a very expensive treatment at a whopping $300,000 a year!!! This is only one reason why we want to help others.